Do you have relatives or friends with lupus, rheumatoid arthritis, psoriasis, or ankylosing spondylitis?
Now is your chance to help advance some of our current research efforts. As many of you may remember, earlier this year the Scleroderma Education Project conducted an anonymous survey of blood types in patients with diagnosed systemic scleroderma. We received 924 responses to the survey over a six-week period, which is remarkably high for a rare disease like this. When we looked at the results, it was very clear that the distribution of blood types in patients with diagnosed systemic scleroderma is very different from overall population norms, at least in this self-report survey.
Understanding if this unexpected blood type distribution pattern is unique to scleroderma or also occurs in other autoimmune diseases is very important. When diseases have abnormal blood type distribution patterns, figuring out why this is the case can be very important in advancing research on new treatment approaches.
As the next step in this research, we are extending the survey to four other autoimmune diseases: lupus, rheumatoid arthritis, psoriasis, and ankylosing spondylitis. This is now an official Univ. of Wisconsin research study that has gone through IRB review. I am the lead investigator. Here is a link to a detailed description of the study: Blood Type Survey Information
If you have relatives or know anyone formally diagnosed with one of these conditions, you can help. In order to take one of these surveys, you must have a formal diagnosis of the specific disease AND know your blood type (A+, B+, AB+, O+, A-, B-, AB-, O-). Often people can find out their blood type by calling their doctors office (especially women who have gone through at least one pregnancy).
To make it easy for people to take the survey, this page contains links to each of the four surveys: http://sclerodermainfo.org/blood-type-study/. Or, just tell people to go to the Scleroderma Education Project website at SclerodermaInfo.org and click the link in bright red type at the top of the page and it will take you directly to this page.