Currently, there are about a dozen systemic sclerosis patients on the pulsed plasma exchange (PPE) protocol described in this document: http://sclerodermainfo.org/pdf/TPE-Guidelines-US.pdf. Some have been on the protocol for years and [...]
On Saturday, May 15th, I did a presentation and follow-up Q&A session to a joint meeting of several Scleroderma Foundation chapters on a very important, but complex topic – ANA [...]
We are pleased to announce that our CEO/Founder, Ed Harris, was invited by the Southern California chapter of the Scleroderma Foundation to give a talk on the use of therapeutic plasma [...]
We are frequently asked by patients interested in talking to their doctor about trying therapeutic plasma exchange (TPE) how to approach this topic. This can be very challenging, especially since [...]
Note: While this article is not specifically about systemic sclerosis, since there is a lot of interest currently about when people can safely resume normal activities in the midst of [...]
Recently, in a scleroderma focused Facebook patient support group, a newly diagnosed patient posted this comment after her initial doctor visit: "…he told me that all they can do is [...]
Scl-70 antibody testing can be done by a number of different methods. Historically, Scl-70 antibody testing was mostly done by a technique called double immunodiffusion (ID), which is considered to [...]
Recently, we have been getting an increasing number of inquiries about the use of Therapeutic Plasma Exchange (TPE) as a potential treatment for systemic sclerosis (SSc). If any of you [...]
Diagnosis of systemic scleroderma can often be very challenging. Diagnosis is done by a combination of lab tests (ANA/antibodies) and clinical symptoms such as skin thickening, puffy hands, telangiectasias. Additional symptoms [...]
This past March, after we announced that the research paper “Therapeutic Plasma Exchange for the Treatment of Systemic Sclerosis: A Comprehensive Review and Analysis” had been published in the Journal [...]
