Two Patients Starting Individual One-year Trials of Therapeutic Plasma Exchange

I am pleased to announce that as of this past Friday, there are now two patients who have started one-year, individual trials of Therapeutic Plasma Exchange (TPE) using the protocol that my research group developed as a starting point for clinicians planning individual trials of TPE.  Note that this is not a formal study but… Continue Reading

Therapeutic Plasma Exchange Review Paper Accepted for Publication!

I am very happy to announce that our review paper titled “Therapeutic Plasma Exchange for the Treatment of Systemic Sclerosis: A Comprehensive Review and Analysis” was just accepted for publication by the “Journal of Scleroderma and Related Disorders”.  JSRD is the top research journal in this field and is read by most researchers and clinicians… Continue Reading

The Scleroderma Education Project is Expanding Our Mission

Our Mission: Education Since 1995 my focus has been on providing comprehensive, up-to-date, research-based information on systemic scleroderma diagnosis and treatment written in a language that patients can readily understand.  It is my strong belief that patients who are thoroughly educated about their disease can work more effectively with their team of physicians to make… Continue Reading

Revised: “Scleroderma News” Follow-Up Interview About Recent ACR Research Poster on TPE to Treat Raynaud’s and Digital Ulcers

(Note: the link to the article in Scleroderma News in the earlier version of this post did not work correctly in some browsers.  More information on how to locate the article is included in this revised post.) Scleroderma News just released a follow-up interview with me on the research poster “Therapeutic Plasma Exchange for the Treatment of… Continue Reading

Scleroderma News: Therapeutic Plasma Exchange May Be an Effective Treatment for Raynaud’s and Digital Ulcers in Scleroderma

From Scleroderma News (, October 21, 2016: “An overview of published studies exploring the use of therapeutic plasma exchange (TPE) in scleroderma patients indicated that the treatment improved Raynaud’s phenomenon and digital ulcers. Findings also showed that TPE made blood less viscous, improving blood flow and preventing blood vessels from becoming blocked.”  The abstract, published in Arthritis and Rheumatology, can… Continue Reading

Scleroderma News: New Guidelines Aim to Advance Plasma Exchange as Scleroderma Therapy

From Scleroderma News (, August 17, 2016: The Scleroderma Education Project ( recently released guidelines for patients and doctors wishing to know more about therapeutic plasma exchange (TPE) as a treatment option for limited scleroderma. The guidelines are designed to facilitate data collection to support the launch of a randomized clinical trial, and follow the… Continue Reading

Scleroderma News: Alternative Scleroderma Theory Advanced by 22 Years of Therapeutic Plasma Exchange

From Scleroderma News (, July 21, 2016: A case study, describing the successful treatment of a scleroderma patient with repeated therapeutic plasma exchange (TPE) for more than 22 years, presents an alternative theory about the beneficial effects of the treatment and the disease itself. The study “Successful long-term (22 Year) treatment of limited scleroderma using therapeutic plasma exchange:… Continue Reading

Scleroderma News Story: “Therapeutic Plasma Exchange and Scleroderma: An Exclusive Interview with Edward Harris”

The leading news source for information on scleroderma research – Scleroderma News ( – has just published an interview with Ed Harris, founder of the Scleroderma Education Project, about a research poster that he recently presented at the American Society for Apheresis (ASFA) annual meeting in early May, 2016.  The poster was a review of all of the published research… Continue Reading

Scleroderma Education Project Just Featured in “Scleroderma News”!

The leading news source for information on scleroderma research – Scleroderma News ( – has just published an article about the Scleroderma Education Project, including coverage of our recent educational article titled “Yes, You DO Have Internal Organ Damage, But…”.  Scleroderma News has also recognized the Scleroderma Education Project as a “trusted source of information about scleroderma”.  Here is… Continue Reading

The Scleroderma Education Project is now a 501c3 tax-exempt organization!

The United States Internal Revenue Service has just granted 501c3 tax-exempt status to the Scleroderma Education Project. This makes US contributions tax deductible. Our hope is that we will now be better able to do the modest fund raising needed to fully support our three-part Mission: Education Patient Support Research You can read more about… Continue Reading