Understanding the New 2013 Formal Diagnostic Criteria for Systemic Scleroderma

(Note: This is extracted from the Differential Diagnosis section of the Scleroderma FAQ.) In late 2013, the American College of Rheumatology (ACR) and the European League Against Rheumatism (EULAR) approved a new set of diagnostic criteria for systemic Scleroderma, replacing the older 1980 diagnostic criteria.  These new standards will improve clinical diagnosis of systemic Scleroderma, but… Continue Reading

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Recommended New Documentary on Scleroderma

Narrated by Bob Saget, “Project Scleroderma: Beneath The Surface” is a film that documents the grass-roots mission of a young woman, Christy McCaffrey, from Philadelphia working to raise awareness for a scarcely known disease that took her mother’s life. In this highly inspirational and hopeful story, viewers follow Christy as she works diligently to create… Continue Reading

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Understanding Medical Research – Part 1

Background When someone is first diagnosed with a serious illness like scleroderma, many people turn to the Internet to supplement the information they received from their doctor. The amount of information that patients receive from their doctors varies widely – from just a basic verbal “There is no real treatment but we can deal with… Continue Reading

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Should I See a Scleroderma Expert?

One of the patients that I am working with asked me whether she should go see a scleroderma expert. It would be a very long trip and she was concerned that they might not really have anything to offer beyond what her local docs were already doing. Here is my response to her: ——————————————- xxxxx, This… Continue Reading

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