New Educational Video: Therapeutic Plasma Exchange as a Treatment for Systemic Sclerosis

We are pleased to announce that the Scleroderma Education Project has just started a new YouTube educational channel.  Our first video is an overview of the research literature on therapeutic plasma [...]

June 29th, 2018|

Safety of Autologous Hematopoietic Stem Cell Transplants (HSCT) in Systemic Sclerosis

For those of you interested in autologous stem cell transplants, this paper was just published open access in "Clinical Rheumatology": Autologous HSCT may be an appropriate treatment option to [...]

December 23rd, 2017|

“Role of Autoantibodies in Systemic Sclerosis: Relevance in Clinical Practice”

Thomas A. Medsger, Jr., MD University of Pittsburg School of Medicine I just found a recent presentation by Dr. Thomas Medsger on the clinical significance of autoantibodies in systemic scleroderma. [...]

March 31st, 2017|

“Diffuse”? “Limited”? “Overlap”? “Sine”?: Know Your Terms and Your Antibody Type

Background – 25 Years Ago The names used for referring to the scleroderma family of disease are very confusing for a number of reasons. Historically, there were two known forms of [...]

June 21st, 2016|

National Public Radio (NPR) Report on the Long-Term Dangers of Heartburn Medicines

This morning, NPR did a report on dangers associated with long-term use of proton pump inhibitors such as Prilosec (omeprazole) and also the fact that it is nearly impossible to [...]

February 15th, 2016|

Understanding the New 2013 Formal Diagnostic Criteria for Systemic Scleroderma

In late 2013, the American College of Rheumatology (ACR) and the European League Against Rheumatism (EULAR) approved a new set of diagnostic criteria for systemic Scleroderma, replacing the older 1980 [...]

October 19th, 2015|

¡“Guía para Nuevos y Futuros Pacientes” disponible ahora en Español!

Estamos contentos de anunciar que acabamos de traducir la Guía para Nuevos y Futuros Pacientes” en Español.  Este debe ayudar en hacer más disponible esta información importante a la comunidad [...]

August 12th, 2015|