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Survey: Does Your Insurance Cover Therapeutic Plasma Exchange as a Treatment for Scleroderma?

Therapeutic plasma exchange (TPE / therapeutic apheresis) is a commonly used treatment for a number of neurological and other disorders.  It is a simple procedure, usually performed in an outpatient setting, that replaces most of the plasma (liquid part of your blood) with a replacement fluid, typically sterilized albumin.  A typical TPE treatment takes about 2 1/2 hours from start to finish.  TPE has an excellent safety profile with no known long-term risks or side [...]

February 14th, 2019|Categories: News & Announcements|0 Comments

False Positive Scl-70 Results – A Major Problem in Laboratory Testing

Scl-70 antibody testing can be done by a number of different methods. Historically, Scl-70 antibody testing was mostly done by a technique called double immunodiffusion (ID), which is considered to be the most reliable Scl-70 antibody testing method [1]. ID testing is time-consuming and expensive. Because of the difficulty and cost of doing Scl-70 antibody testing using ID, almost all labs have switched to ELISA or Multiplex testing. While Scl-70 antibodies are considered to be [...]

Therapeutic Plasma Exchange (TPE) – Additional Questions and Answers

Recently, we have been getting an increasing number of inquiries about the use of Therapeutic Plasma Exchange (TPE) as a potential treatment for systemic sclerosis (SSc).  If any of you are unsure what we are talking about, start by watching this video: https://youtu.be/iWT0oW8FRdE.  It is targeted at clinicians but is pretty easy to understand. A number of new questions have come up recently, so we thought this post might be useful in answering them. Who [...]

December 10th, 2018|Categories: Educational Articles|0 Comments

SMILE! Amazon will donate to the Scleroderma Education Project!

Several years ago, Amazon set up a program to help registered (501c3) non-profit organizations.  The program is called Amazon Smile.  After you select a non-profit organization, for every dollar you spend on Amazon, Amazon matches this with a 0.5 cent donation to your designated non-profit organization.  It is as simple as that.  It costs you nothing, but those 0.5% donations can really add up over time. Here is how to set up and use Amazon [...]

October 29th, 2018|Categories: News & Announcements, Popular|Tags: |0 Comments