¡“Guía para Nuevos y Futuros Pacientes” disponible ahora en Español!
Estamos contentos de anunciar que acabamos de traducir la Guía para Nuevos y Futuros Pacientes” en Español. Este debe ayudar en hacer más disponible esta información importante a la comunidad de habla hispana en los Estados Unidos y por todo Latinoamérica. Haz clic aquí para más información. “Guide for New and Future Patients” Now Available in Spanish! We are pleased to announce that we have completed the translation of the Guide for New and [...]
Recommended New Documentary on Scleroderma
Documentary Industry with Futuristic Business Tech Background Narrated by Bob Saget, “Project Scleroderma: Beneath The Surface” is a film that documents the grass-roots mission of a young woman, Christy McCaffrey, from Philadelphia working to raise awareness for a scarcely known disease that took her mother’s life. In this highly inspirational and hopeful story, viewers follow Christy as she works diligently to create a global movement to rally behind the patients who are suffering [...]
“I have Lupus and RA and IBS and CREST and Fibromyalgia and…”
This type of comment appears in scleroderma patient support groups all the time. And it is quite possible that if you were to look at the patient’s chart, this is exactly what you would see in their list of diagnostic codes. While this list may be accurate, sometimes it is not and it’s worth spending a little time explaining why this might be the case, especially for patients with systemic scleroderma. Systemic scleroderma, as many [...]
New Study Indicates that Men with Scleroderma Have a Significantly Worse Prognosis than Women
man in conversation with doctor A new, just published, large-scale, multicenter study indicates that while systemic scleroderma is much more common in women than men (about 6 to 1 according to this study), men have a significantly worse prognosis due to an increased risk of major lung and heart complications. Part of the reason for this is that men are more likely to present with diffuse systemic scleroderma where women were more likely [...]