Category Archives: Educational Articles

2017 EULAR Report Recommendations Summary Chart

I have had several requests for a simplified version of the new 2017 “Update of EULAR recommendations for the treatment of systemic sclerosis” paper that I mentioned in a post yesterday.  The paper includes a summary table that consolidates all of the new recommendations into a single table, sorted by symptoms.  You can view a slightly simplified version of the summary chart in either US or A4 formats here:

http://sclerodermainfo.org/pdf/2017-EULAR-Recommendations-US.pdf
http://sclerodermainfo.org/pdf/2017-EULAR-Recommendations-A4.pdf

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Update of EULAR Recommendations for the Treatment of Systemic Sclerosis

Recently, the European League against Rheumatism (EULAR) released updated research-based recommendations for treating all aspects of systemic scleroderma.  It is freely available online here: http://ard.bmj.com/content/early/2017/04/25/annrheumdis-2016-209909?papetoc.  While this is a very technical article, most of it is actually pretty easy to understand as long as you are not intimated by the heavy use of abbreviations, universal in published medical research papers.… Continue Reading

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Prevalence and Incidence of Systemic Scleroderma in the US

It is very common to read in articles about systemic scleroderma that there are about 300,000 people in the US with this disease.  This number is completely wrong, according to numerous research studies.  The most complete data on the prevalence (number of diagnosed cases) and incidence (number of new cases per year) of systemic scleroderma comes from a… Continue Reading

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Suggested Guidelines for Individual Trials of Therapeutic Plasma Exchange to Treat Systemic Scleroderma

Recently, two patients who are currently discussing therapeutic plasma exchange (TPE) with their physicians as a possible treatment option asked me for some information to give to their physicians that described the protocol that was used in the recently published case report (Harris et al. 2016) titled “Successful Long-Term (22 Year) Treatment of Limited Scleroderma… Continue Reading

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“Diffuse”? “Limited”? “Overlap”? “Sine”?: Know Your Terms and Your Antibody Type

(This post is focused on systemic forms of scleroderma only. For a discussion on non-systemic forms, for example, linear scleroderma or morphea, or scleroderma-like disorders, see the Differential Diagnosis section of the Scleroderma FAQ.) 25 Years Ago The names used for referring to the scleroderma family of disease are very confusing for a number of… Continue Reading

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Yes, You DO Have Internal Organ Involvement, But…

(Please note – this article was reviewed for accuracy by two physicians, one of whom is a top scleroderma expert.) This article was prompted by a post in one of the scleroderma focused Facebook support groups that I am active in.  The poster indicated that she had read an article that said that internal organ… Continue Reading

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Understanding the New 2013 Formal Diagnostic Criteria for Systemic Scleroderma

(Note: This is extracted from the Differential Diagnosis section of the Scleroderma FAQ.) In late 2013, the American College of Rheumatology (ACR) and the European League Against Rheumatism (EULAR) approved a new set of diagnostic criteria for systemic Scleroderma, replacing the older 1980 diagnostic criteria.  These new standards will improve clinical diagnosis of systemic Scleroderma, but… Continue Reading

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