New Scleroderma Education Project Website Now Live!
After nearly nine months of effort involving an amazing team of volunteers, the brand-new Scleroderma Education Project website is now live! When the first version of the Scleroderma FAQ™ was [...]
Therapeutic Plasma Exchange Review Paper Just Published!
We are pleased to announce that a new research paper titled Therapeutic plasma exchange in the treatment of systemic sclerosis: A comprehensive review and analysis has just been published online [...]
Safety of Autologous Hematopoietic Stem Cell Transplants (HSCT) in Systemic Sclerosis
For those of you interested in autologous stem cell transplants, this paper was just published open access in "Clinical Rheumatology": https://link.springer.com/article/10.1007/s10067-017-3954-5. Autologous HSCT may be an appropriate treatment option to [...]
Article on Heated Gloves for Hand Dysfunction in Scleroderma
This article was supplied to me courtesy of Dr. Allan Metzger*, Medical Director of RDL Reference Lab in Los Angeles. It is an anecdotal guest column in the publication "The [...]
National Public Radio (NPR) Report on the Long-Term Dangers of Heartburn Medicines
This morning, NPR did a report on dangers associated with long-term use of proton pump inhibitors such as Prilosec (omeprazole) and also the fact that it is nearly impossible to [...]
¡“Guía para Nuevos y Futuros Pacientes” disponible ahora en Español!
Estamos contentos de anunciar que acabamos de traducir la Guía para Nuevos y Futuros Pacientes” en Español. Este debe ayudar en hacer más disponible esta información importante a la comunidad [...]
Recommended New Documentary on Scleroderma
Documentary Industry with Futuristic Business Tech Background Narrated by Bob Saget, “Project Scleroderma: Beneath The Surface” is a film that documents the grass-roots mission of a young woman, [...]
New Study Indicates that Men with Scleroderma Have a Significantly Worse Prognosis than Women
man in conversation with doctor A new, just published, large-scale, multicenter study indicates that while systemic scleroderma is much more common in women than men (about 6 to [...]