We are frequently asked by patients interested in talking to their doctor about trying therapeutic plasma exchange (TPE) how to approach this topic. This can be very challenging, especially since [...]
This article by the World Scleroderma Foundation on systemic sclerosis and COVID-19 just came out today in the Annals of the Rheumatic Diseases: https://ard.bmj.com/content/early/2020/04/29/annrheumdis-2020-217407. I think it is well worth [...]
Note: While this article is not specifically about systemic sclerosis, since there is a lot of interest currently about when people can safely resume normal activities in the midst of [...]
2019 has been a year of significant progress in systemic sclerosis (SSc) research and treatments. Here are some of the highlight Key Treatment Advances First Scleroderma Specific Drug Approved: The [...]
As you may know, the Scleroderma Education Project is a 501c3 non-profit organization, so as you think about charitable giving for the year, please consider an end-of-year donation to the [...]
Scleroderma News just published a story about a new research paper in Clinical Rheumatology that shows a link between abnormal whole blood viscosity (WBV) and pulmonary artery hypertension (PAH): Scleroderma News: Abnormal WBV and [...]
Recently, in a scleroderma focused Facebook patient support group, a newly diagnosed patient posted this comment after her initial doctor visit: "…he told me that all they can do is [...]
Therapeutic plasma exchange (TPE/therapeutic apheresis) is a process in which most of the plasma (the liquid part of blood) is replaced by a substitute fluid such as sterilized albumin in [...]
Scl-70 antibody testing can be done by a number of different methods. Historically, Scl-70 antibody testing was mostly done by a technique called double immunodiffusion (ID), which is considered to [...]
Recently, we have been getting an increasing number of inquiries about the use of Therapeutic Plasma Exchange (TPE) as a potential treatment for systemic sclerosis (SSc). If any of you [...]
