Currently, there are about a dozen systemic sclerosis patients on the pulsed plasma exchange (PPE) protocol described in this document: http://sclerodermainfo.org/pdf/TPE-Guidelines-US.pdf. Some have been on the protocol for years and [...]
I am currently (5/6/2022) at the American Society for Apheresis (ASFA) annual meeting in Philadelphia presenting a poster titled "The Effects of Pulsed Therapeutic Plasma Exchange on Gastrointestinal Symptoms in [...]
On Saturday, May 15th, I did a presentation and follow-up Q&A session to a joint meeting of several Scleroderma Foundation chapters on a very important, but complex topic – ANA [...]
Quick Survey – ANA Titers in SSc Patients While this is not widely known, some antibodies that are specific to the systemic sclerosis family of diseases tend to have high [...]
Last week, we had a Zoom call that included eight of the nine people who are now individually trying an experimental treatment called pulsed plasma exchange (PPE) to treat their [...]
Several years ago, Amazon set up a program to help registered (501c3) non-profit organizations. The program is called Amazon Smile. After you select a non-profit organization, for every dollar you [...]
We are pleased to announce that our CEO/Founder, Ed Harris, was invited by the Southern California chapter of the Scleroderma Foundation to give a talk on the use of therapeutic plasma [...]
Over the past 28 years, the Dept. of Defense (DOD) has funded almost $16 billion in medical research through the Congressionally Directed Medical Research Program. For the first time, scleroderma [...]
We are frequently asked by patients interested in talking to their doctor about trying therapeutic plasma exchange (TPE) how to approach this topic. This can be very challenging, especially since [...]
This article by the World Scleroderma Foundation on systemic sclerosis and COVID-19 just came out today in the Annals of the Rheumatic Diseases: https://ard.bmj.com/content/early/2020/04/29/annrheumdis-2020-217407. I think it is well worth [...]
