News & Announcements

Report from the Scleroderma Foundation National Patient Education Conference

The 20th annual Scleroderma Foundation national patient education conference was held over this past weekend in Philadelphia.  As always, it was excellent and very informative.  Attendance was over 700 people, a [...]

August 1st, 2018|

New Educational Video: Therapeutic Plasma Exchange as a Treatment for Systemic Sclerosis

We are pleased to announce that the Scleroderma Education Project has just started a new YouTube educational channel.  Our first video is an overview of the research literature on therapeutic plasma [...]

June 29th, 2018|

News Story: “Therapeutic Plasma Exchange Appears to Treat SSc, But Clinical Trial Needed“

Scleroderma News just ran a feature story on our newly published research paper titled “Therapeutic Plasma Exchange for the Treatment of Systemic Sclerosis: A Comprehensive Review and Analysis”.  The paper [...]

April 12th, 2018|

Safety of Autologous Hematopoietic Stem Cell Transplants (HSCT) in Systemic Sclerosis

For those of you interested in autologous stem cell transplants, this paper was just published open access in "Clinical Rheumatology": https://link.springer.com/article/10.1007/s10067-017-3954-5. Autologous HSCT may be an appropriate treatment option to [...]

December 23rd, 2017|

National Public Radio (NPR) Report on the Long-Term Dangers of Heartburn Medicines

This morning, NPR did a report on dangers associated with long-term use of proton pump inhibitors such as Prilosec (omeprazole) and also the fact that it is nearly impossible to [...]

February 15th, 2016|

¡“Guía para Nuevos y Futuros Pacientes” disponible ahora en Español!

Estamos contentos de anunciar que acabamos de traducir la Guía para Nuevos y Futuros Pacientes” en Español.  Este debe ayudar en hacer más disponible esta información importante a la comunidad [...]

August 12th, 2015|