Pulsed Plasma Exchange (PPE) Patient 2: 6-Year Update
At this point, there are an estimated two dozen patients world-wide on my pulsed therapeutic plasma exchange (PPE) protocol. As my research fellowship at the Univ. of Wisconsin ended a [...]
Talking to Your Doctor About Trying Pulsed Plasma Exchange? Invite a Hematologist into the Discussion
As more and more patients are now starting trials of pulsed therapeutic plasma exchange (PPE) as an experimental treatment for their diagnosed systemic scleroderma (SSc), I have noticed that in [...]
Pulsed Plasma Exchange (PPE) treatments must be continued indefinitely
Currently, there are about a dozen systemic sclerosis patients on the pulsed plasma exchange (PPE) protocol described in this document: http://sclerodermainfo.org/pdf/TPE-Guidelines-US.pdf. Some have been on the protocol for years and [...]
The Effects of Pulsed Therapeutic Plasma Exchange on Gastrointestinal Symptoms in Limited Systemic Sclerosis: A Case Series
I am currently (5/6/2022) at the American Society for Apheresis (ASFA) annual meeting in Philadelphia presenting a poster titled "The Effects of Pulsed Therapeutic Plasma Exchange on Gastrointestinal Symptoms in [...]
ANA and Antibody Testing in Systemic Sclerosis: A Guide for Patients
On Saturday, May 15th, I did a presentation and follow-up Q&A session to a joint meeting of several Scleroderma Foundation chapters on a very important, but complex topic – ANA [...]
ANA Titer and Antibody Quick Survey
Quick Survey – ANA Titers in SSc Patients While this is not widely known, some antibodies that are specific to the systemic sclerosis family of diseases tend to have high [...]
Pulsed Plasma Exchange: A Conversation With Eight Pioneers
Last week, we had a Zoom call that included eight of the nine people who are now individually trying an experimental treatment called pulsed plasma exchange (PPE) to treat their [...]
Happy Holidays! Help Amazon Donate to the Scleroderma Education Project
Several years ago, Amazon set up a program to help registered (501c3) non-profit organizations. The program is called Amazon Smile. After you select a non-profit organization, for every dollar you [...]
Scleroderma Foundation (Southern California Chapter) Talk on Therapeutic Plasma Exchange
We are pleased to announce that our CEO/Founder, Ed Harris, was invited by the Southern California chapter of the Scleroderma Foundation to give a talk on the use of therapeutic plasma [...]
Dept. of Defense Funding for Scleroderma Research
Over the past 28 years, the Dept. of Defense (DOD) has funded almost $16 billion in medical research through the Congressionally Directed Medical Research Program. For the first time, scleroderma [...]